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Girl, 7, who had no symptoms diagnosed with brain tumour after mum spotted tiny signs

'It should be as normal as going to the hairdressers or going to see a dentist'

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News
Lee Grimsditch Nostalgia Writer and Raphael Henry PA Real Life
08:27, 25 Apr 2025
Esmai standing in front of a lake
Sophie Evans' daughter, Esmai

A mother has stressed the importance of children's eye tests after what happened to her own daughter.

Sophie Tean, 35, took her older daughter, Esmai, to the optician in January 2024 when she complained she could "see spots".

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Despite being told there were no problems and suffering from no symptoms, a year later, after her mum noticed what appeared to be "a mini seizure", Sophie returned for an eye test and was advised to go straight to A&E.

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An MRI scan revealed that Esmai had a brain tumour so large it was distorting the shape of her brain. Now, as Esmai undergoes radiotherapy after a successful operation to remove the tumour, Sophie is urging other parents to take their children's eye health seriously.

"I don't think anybody really thinks to take their children for eye tests," said Sophie.

"I don't think I would have done unless she said to me she was seeing spots.

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"Regular eye checks should be a very normal thing. It should be as normal as going to the hairdressers or going to see a dentist."

In January 2024, Esmai started telling her mum that she was seeing spots.

Sophie said: "I took her to the opticians, and they found that everything was fine."

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Throughout 2024, Sophie recalled, Esmai would occasionally see spots, but it did not seem serious.

"We all have it: you rub your eye, or turn from one light to another, and you see spots," Sophie said.

"Then at one point, she was walking towards me and her pupils went really small and she just zoned out.

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"Then they suddenly shot really big, and she went, 'oh, sorry Mom, I just saw spots again.'

"To me, that looked like a mini seizure."

'She should have had something wrong'

Sophie took Esmai back to the opticians in January 2025. They discovered a swelling at the back of Esmai's eyes and on her optic nerves, and said she should go to A&E immediately.

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An MRI scan a few days later confirmed that Esmai had a "considerable" ependymoma growing in her brain.

"The tumour had actually grown so big over this time that the central line (of her brain) had shifted and curved," Sophie said.

"They're quite astounded that she didn't have any other difficulties.

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Esmai, young, holding two baby crabs
Esmai told her mum she started seeing spots

"No headaches, no weight loss, no sickness, no learning troubles – nothing.

"She should have had something wrong."

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As a parent, Sophie said: "The first thing you think is that your child is going to die.

"I don't think there are any words to describe (that feeling)."

Esmai in a hopsital bed, with a certificate of braveness with her favourite character, Stitch, on it
Esmai just after her brain surgery
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In February, Esmai, now aged seven, underwent a seven-hour-long surgery to remove the tumour at Alder Hey Children's Hospital in Liverpool, which went "brilliantly".

She has now begun an intensive programme of radiotherapy at the Proton Beam Therapy Centre in Manchester.

This involves being "pinned" to a bed by a special mask before a high-energy beam of protons is sent through her brain, targeting any remaining cancerous cells.

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According to a recent study published by the Society for Neuro-Oncology, the kind of ependymoma that Esmai has comes with a roughly 35% chance of relapse within 10 years.

Esmai with a Lilo and Stitch themed sticker board tracking her treatment
Esmai has to complete 33 sessions of radiotherapy

Sophie explained: "With cancer, whether you get free of it or not, it never leaves you, because you just don't know if it's ever going to come back.

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"If it does, because of the strength and the type, it will be harder to get rid of.

"We might not be so lucky next time."

Esmai has been responding to treatment well, but Sophie is still worried about the effect this experience may have on her.

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"She's blocked a lot of it out," Sophie explained.

"But she does get very anxious now. She'll say to me, 'I'm feeling worried, and I don't really know why.'

"It'll happen at random times of the day, maybe when she's having fun or something, she'll just suddenly go a little bit withdrawn."

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How you can help the family

Sophie said Esmai "loves outdoor things" and is "very girly".

She added: "She's quite ahead of her time.

"I think she's desperate to be older than what she is. She quite fancies herself as a teenager."

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Esmai wearing a jacket with stars on it
Sophie says her daughter has blocked out much of the traumatic experience

Esmai will be undergoing treatment on her eighth birthday, May 12.

Sophie, Esmai, and Sophie's younger daughter Grace, aged two, have temporarily moved into hospital accommodation in Manchester while Esmai's treatment is ongoing.

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"It's a little bit difficult with having a two-year-old. She thinks she's on holiday – she's having a great time," Sophie said.

As a hairdresser, being away from home for the duration of Esmai's treatment means that Sophie cannot work.

Esmai, Sophie, and Grace, all hugging. Esmai has lost a patch of hair on her head
Esmai is now losing her hair in the area targeted by her radiotherapy treatment
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A friend and neighbour, Lisa, has raised more than £3,000 through a GoFundMe to support Sophie while Esmai is undergoing treatment.

Sophie said she initially found it "embarrassing" to share Esmai's story on GoFundMe, and only allowed Lisa to post it on the condition that it highlighted the importance of eye tests for children.

Now, she said, she is "grateful" for the opportunity to give Esmai some "happy experiences" while her treatment continues.

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"I've been able to take her out to the Sea Life Centre and bowling, and without it I wouldn't have been able to do that," she said.

"It means it's not going to be just bad memories."

The fundraiser for Esmai can be found here.

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